This is my story as a chiarian. I have been a chiarian all my life. The symtpoms have always been there, but there hasn't been a diagnosis until November 2005 when I went to The Chiari Institute. The tonsil herniation was discovered in an MRI in August 2005 after my request for a new MRI, and I went from neurologist to neurosurgeon, and told that my "chiari was subjective" and to "run if anyone wanted to do surgery on me." I did have surgery, a sub-occipital decompression, C-1 laminectomy, C-2 partial laminectomy, and extraction/fusion to C-4. The recovery continues. I was also diagnosed with a retroflexed odontoid, Eagles Syndrome, Ehlers-Danlos Syndrome, Chronic Fatigue Syndrome and migraines. This has been the most humbling experience of my life. Through this website I hope to help others learn to advocate for themselves, find appropriate medical treatment, listen to their bodies and find good medical care even when there seems to be none around. You can do this, if I can, anyone can! This is where you tell your story or provide information to your visitors. Be sure to include changes or new information in a timely fashion. By keeping your Web site up to date, visitors will have a reason to return often. You may add text or HTML code to this field and make it as complex as you want. Or, you may erase the content of this field causing it to be hidden when people visit your site. This is where you tell your story or provide information to your visitors. Be sure to include changes or new information in a timely fashion. By keeping your Web site up to date, visitors will have a reason to return often. You may add text or HTML code to this field and make it as complex as you want. Or, you may erase the content of this field causing it to be hidden when people visit your site. This is where you tell your story or provide information to your visitors. Be sure to include changes or new information in a timely fashion. By keeping your Web site up to date, visitors will have a reason to return often. You may add text or HTML code to this field and make it as complex as you want. Or, you may erase the content of this field causing it to be hidden when people visit your site.

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